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I was diagnosed with Esophageal Lichen Planus in 2014. By the time I got my diagnosis 6 years after my symptoms started, I had lost over 100 lbs and was throwing up every other meal. I now have an endoscopy with dilation done every 4 months to enable me to eat without choking. To date, I have had 35 such endoscopies. I am 72 years old and anticipate that I will have to do this unless/until my body no longer tolerates them. I would love to hear from other folks with the same diagnosis.
Replies to "I was diagnosed with Esophageal Lichen Planus in 2014. By the time I got my diagnosis..."
I also have Esophageal Lichen Planus. I'm 63yrs
old. I was recently diagnosed with it by a gastroenterologist! I had scopes and biopsies done throughout my intestinal system. I have lost 30lbs. in the past few months. The constant inflammation and pain in my mouth makes eating tough. I am using Marijuana in the evenings which helps my mouth and increases my appetite so I can eat a little bit. I live in Wa. state where it's legal.
Same here! I have had approx the same number of dilations and now have them every 3 months; hopefully will keep moving the dates up as long as the blockage keeps improving. I have lp in quite a few other parts of my body.
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Welcome @snowfire, I can't imagine how difficult that has been for you these past years having 35 endoscopies with dilation so that you can eat without choking. I'm tagging @fourof5zs, @cld120, and @kozlo52 have posted about having an endoscopy with dilation in other discussions and may have some thought or suggestions to share with you.
Have you made any changes to your lifestyle or diet to see if it makes a difference?