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@windyshores

I had osteoporosis long before cancer.

The risk of jaw necrosis is said to be low with bisphosphonates and most cases are with the higher doses given (Reclast or Zometa) for cancer.

I think docs were medicating far too early. But once DEXA's show a more serious situation, fractures are a constant risk for most. You can learn how to move, and be careful (I never open windows) but there can be a time when you make a random mistake.

The anabolics improve bone quality as well as density. The problem is that insurance doesn't cover them initially. But there are patient assistance programs (I get Tymlos for free).

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Replies to "I had osteoporosis long before cancer. The risk of jaw necrosis is said to be low..."

It’s great that you were able to get Tymlos. What happened to you is one of my concerns about having zoledronic acid infusions now. If those of us w/ osteoporosis take bisphosphonates for a few years and are later diagnosed w/ cancer and have to take cancer meds that then require that we take even larger doses of bisphosphonates where does that leave us.

Yes, one movement can be the last straw and then one has a fragility fracture and there seems to be no way to know beforehand what movement will be that last straw.

Once everything started to re-open (after COVID), I joined a gym at age 53. I’ve been going for a little over a year, 3 times a week. Before joining, I tried to get advice from my endocrinologist regarding what was safe for me to do exercise-wise, considering my impaired bones, but he didn’t have any advice. I then scheduled an appt with an orthopedics doctor so I could get a referral for physical therapy. I went to physical therapy a few times but they really didn’t have an exercise plan for people with osteoporosis and the exercises they had me doing were way too easy for me. I also searched for osteoporosis appropriate exercises on-line. Much of the info I found is geared toward ppl who are much older than me.

Then I read about the Australian LIFTMOR study—how women in their 70s and 80s were lifting heavier weights and building bone and not fracturing and that is when I joined the gym.

I started slow and have gradually increased the weights on the weight machines I use and I do joke that since no doctors can give me any real advice about what my bones can handle that I guess I’ll keep going (increasing weights) until something snaps—I hope that doesn’t happen but it’s like you said, you never know.