I saw one at University of New Mexico. There was a consult with Mayo (via my oncologist), too. Both emphasize "this is treated like ordinary breast cancer." To me, this is difficult to understand, but it is the rule. The NETs specialist said my tumor was too fast moving for NET drugs. My GP would like me to go to U of Utah for a specialist but frankly I doubt there is another opinion. It is very frustrating b/c there are very few stats or outcomes upon which to base a decision. I had a lumpectomy on Thursday and mercifully am healing nicely but my oncologist sees this as palliative rather than curative (prevents breast ulceration but does not extend life.) To be honest the only way I can manage is to accept that I have a poor prognosis, rely on my family, friends, and spiritual beliefs, and attempt some quality of life. Also to do only treatments that I can tolerate (as opposed to chemo). I expect a trajectory to palliative care and then hospice. Advice welcome!