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Radical Cystectomy: Would like to hear the experiences of others

Bladder Cancer | Last Active: Mar 8 1:37pm | Replies (31)
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@ggarrepy

I am a failed BCG with HG t1 and now suspicious for t2 post BCG. I had a post BCG cysto. Two areas of concern. TURBT showed recurrence 5 weeks out from treatment so I am heading to surgery for radical cystectomy and ileal conduit in March. Any words of wisdom are appreciated. BCAN is great for education and encouragement so I like their site.

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Replies to "I am a failed BCG with HG t1 and now suspicious for t2 post BCG. I..."
Colleen Young, Connect Director | @colleenyoung | Feb 10, 2023

@ggarrepy, sorry to hear that BCG treatment didn't work for you. I moved your post about heading for radical cystectomy and ileal conduit soon to this existing discussion:
- Radical Cystectomy: Would like to hear the experiences of others https://connect.mayoclinic.org/discussion/radical-cystectomy/
I did this so you can connect with others like @jessi684422 @sue225 @katydid77 @spooz2

Sue shares more in this discussion:
– My husband's radical cystectomy experience https://connect.mayoclinic.org/discussion/my-husbands-radical-cystectomy-experience/

You may also be interested in following the Ostomy support group discussions here: https://connect.mayoclinic.org/group/ostomy/

What questions would you like to ask as you prepare for surgery?

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