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@windyshores

@fearfracture I have had osteoporosis since 2007-
16 years now. I tried a lot of meds and worked with a doctor most of that time including 5 years on a cancer med that caused bone loss (and my docs would not put me on Reclast due to afib). I had traumatic fractures from a fall in 2006; more fractures from an unfortunate movement (and yes am careful, do tai chi, and had PT training on movements to avoid, but mistakes are made) in 2021. I finally managed to get on Tymlos in 2021. Because the dose is adjustable.

So I was very aware of my osteoporosis before my osteoporotic fractures and well aware of how to move. But for complicated reasons, I was not medicated- at all- despite my best efforts (I even went to an immunologist to try to get on Forteo).

My post wasn't really about myself. My point was simple: don't wait for fractures. People may feel strong and not be strong! I don't want others to go through what I have gone through. It is just so hard to accept side effects until you have fractured.

I included the opinion in my last post that insurance needs to approve anabolics before anti-resorptives since the latter can affect the effectiveness of the former. I am not sure but I think the insurance criteria for anabolics may be failing at two drugs, and/or serious DEXA/fractures.

ps when people talk about spinal fractures "healing" I am just not sure what that means. Vertebrae don't "heal" the way an arm break does. They stabilize, which is termed "healing," but the spinal distortion, pain and disability remains. Tymlos has made me a lot stronger but I will be grateful to have scores below -3 if ever possible. I accept my pain but hope others avoid it.

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Replies to "@fearfracture I have had osteoporosis since 2007- 16 years now. I tried a lot of meds..."

Yes, I get that vertebrae don’t heal the way an arm would. I hope you aren’t in too much pain and I get your point of view, especially given you personal experience, but so many women are scared into taking osteo-meds before they have a chance to even process their condition. My point, to the person I was responding to, was give yourself a minute to breathe and think and to come up with a plan that would suit her.

You have been through a lot and everything you wrote confirms exactly what I was saying, osteoporosis is not a one size fits all disease. You had cancer. That changes every thing. I think, depending on the cancer/cancer drugs, it’s pretty common to experience bone quality issues w/ cancer treatments. According to my endocrinologist, when ppl talk about bisphosphonates causing ONJ, most of those cases are in cancer patients who took higher doses of zoledronic acid. The other day, I took a 65 y.o. friend to the dentist to have a tooth that was cracked, pulled. Note, he does not have osteoporosis. While there, I asked the periodontist’s medical assistant, if they ever ran into patients with ONJ. She said there had been one person but that he’d also had cancer. I asked her specifically about ppl taking zoledronic acid for osteoporosis and she said, they’d never had any issues with their patients with osteoporosis who were on bisphosphonates. Again, my point is, we aren’t all dealing with the same issue.