← Return to Pancreatic Cancer Group: Introduce yourself and connect with others
DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1435)Comment receiving replies
Replies to "Hello Beth. Thanks so much for responding to my post. A bit more about my experience...."
Breki
Thank you so much for firther info. Not sure who bet is bit im thinking you were responding to me.
I know my husband and children have left that final decision of whether to stop treatments will be up to me when time comes
Im not sure what my options will be. If any , But its encouraging that that you have come this far.
Hoping the chemo you have just done worked somewhat. But it is nasty stuff
Will be thinking about you stay in touch
🙏🏻💜Mamarina
Dear Breki, thanks for sharing more about your situation. I'm genuinely interested in what you have been through and your decision-making process. I am so sorry you got such a s***** genetic throw of the dice. I have no genetic markers but my mom and sister both died of lung cancer. They were both heavy smokers.
I have been unusually fortunate to have had such a high quality of life for the last year. But if it turns out that I am having a recurrence, I am really not sure what direction I go.
If I'm ct DNA positive, there is one clinical trial with ELI-002 immunotherapy taking place at our nearby hospital at the University of Colorado, Anschutz in Denver that I would consider participating in.
I would also have the option of using gemcitabine with or without Abraxane. From my research and descriptions from my doctor's I would refuse the Abraxane, and I'm not sure I would do either one given the poor ris-benefit outcome data.
Still thinking it through and waiting to get the results of the CTDNA. More later ,
Beth