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← Return to Remission: When do you consider yourself in remission from MAC?
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Remission: When do you consider yourself in remission from MAC?
MAC & Bronchiectasis | Last Active: Feb 13, 2023 | Replies (87)Comment receiving replies
Do you need a mesh nebulizer, or would you be okay with a small, portable compressor type? I have used the DeVilbiss Traveler and the PariTrek S Compact very happily. This is my go to company for deciding - always willing to answer questions
https://justnebulizers.com/collections/portable-nebulizers
I personally will be calling them soon because my Innospire Go is in its last days (after 2+ years.)
I have heard very little positive about the cheap portables available on line for long term use, and many are not made to have the cup detached for disinfecting (probably their way of avoiding complaints about leaks.)
Will you let us know what you find?
Sue
Replies to "Do you need a mesh nebulizer, or would you be okay with a small, portable compressor..."
I am curious Sue. My question is when did you decide to resume the 7% saline nebs? In July, I saw that you had stopped them, but can't see when you decided to restart? I am asking because I just concluded 14 months of ethambutol and azithromycin. My CT scan stays the same, but have no positive mac sputums the last 12 months. I still feel better after nebulizing 7% saline once a day with airway clearance. My infectious disease doctor said bronchiectasis will always be with me so this is important. (on another tack..still haven't found a good pulmonologist.)
Thanks, Cindy
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Thanks; I will check those out and let people know what I decide. I have one of the cheaper mesh ones but it is so unreliable (I’ve replaced it a couple of times while on warranty) that I don’t trust it to take anywhere.
Speaking of reliable, I have 2 of the Pari Vios green compressors (I bought an extra one when everything was on lockdown in the early days of covid so I had a backup in case it stopped working). I’ve already replaced both of those Pari Vios green compressors twice. When I last took the green one in for replacement, they replaced it with a Pari PRONEB Max instead of the green one. I hope it lasts longer than the green ones have.
I am grateful that the green compressors have a 5 year warranty as I’ve needed it. I’m not sure if it is because I use them twice a day but I’ve been pretty disappointed in it.
Anyway, this is probably why I want to make sure that I take a reliable compressor along with me on vacation!