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What topics do you want for the Neuroendocrine Support Group?

Neuroendocrine Tumors (NETs) | Last Active: Feb 8, 2023 | Replies (45)
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@kim1965

My wife is coming up on a surgery date, March 1st for for removal of mass on pancreas, removal of gall bladder, and removal of as many tumors as they can get. This is after 9 cycles of chemo(pills). Just trying to find any and all info on what to expect after the surgery which is very extensive.

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pavlina60 | @pavlina60 | Feb 8, 2023

Hi! I just came out of the hospital yesterday. Had extensive distal pancreatectomy, spleen and gall bladder removal,plus 5 small liver resections. Simultaneously I had a total hysterectomy ( not NET!), discovered during a PET scan. 9hrs surgery. I had a drain bag that was removed yesterday before going home. I also have a feeding tube (since the tumor was touching the stomach and may needed resection (not extensive and I am slowly " waking it up", so I am eating by mouth 🙂 - it is the small wins in life ❤️).
Now recovering at home. Still waiting for the pathology of all. And trying to stay optimistic!!
Be strong, well motivated, and good luck! Pavlina

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