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Ependymoma/subependymoma of the 4th ventricle

Brain Tumor | Last Active: Apr 5 10:42am | Replies (61)
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@mp259

I am one year post op for an ependymoma in the fourth ventricle. I was told from the beginning that it would be a 12 month recovery. I am doing very well. However, I still have what I call "brain pain." Its hard to describe to anyone who has never experienced it. I wouldn't really classify it as pain. Its not a head ache. It could possibly be described as some pressure or tightness in the head. It is typically worse as the day goes on. It is normally located in the top or sides of the head but the surgery was in the back of the head. Does anyone know what I am talking about? Does anyone have any suggestions or remedies? I apologize if this is not the place to post this. I just came across this web site. Thank you.

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Replies to "I am one year post op for an ependymoma in the fourth ventricle. I was told..."
Amanda Roe | @amandajro | Feb 11, 2023

Hello @mp259 and welcome to Mayo Clinic Connect. So often what we are experiencing during our health journey cannot be truly understood by those around us as they aren't going through the same thing. So glad to have you join so you can find others who can relate.

I found a discussion with members who are sharing about ependymoma and wanted to bring you in so you could connect with members who may understand. You can find your post here:
- Ependymoma/subependymoma of the 4th ventricle: https://connect.mayoclinic.org/discussion/ependymomasubependymoma-of-the-4th-ventricle/

Members such as @lioness31277 @pma2022 @jcorcoran @annrmarie and @beckyziegler may be able to come in and share if they can relate.

Has your doctor provided any recommendations?

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