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DiscussionManaging social life and celiac
Autoimmune Diseases | Last Active: Feb 11, 2023 | Replies (7)Comment receiving replies
Replies to "@yellowdoggirl, I think it's a great idea to call the restaurant ahead of time and talk..."
@johnbishop , I used an incorrect term. I said cross-contamination and should have said cross contact with gluten containing items. I really am still learning. Nationalceliac.org offers virtual support groups!
@johnbishop, thank you so much for sending this resource. It has a lot of helpful information and ideas. I think I have been vegetarian/vegan for too long. I tried eating fish a few months ago and I just couldn't tolerate the feel of flesh in my mouth. I must sound like a real fuss pot! With gluten it's an issue of cross-contamination and having people understand that you can't just pick the croutons out of a salad, have something that was cut on the board where bread has been cut, or a positive boiled in the same water where gluten containing pasta was boiled.
Those are things I learned from the dietitian when I was diagnosed. Sometimes I think I sound ridiculous, but it is true that a person with celiac disease does have to be that fussy.
There are apps to find reliably gluten-free restaurants. In this case, I am just a guest, not choosing the restaurant, and still learning how to manage in the world.
Maybe the Celiac Disease Foundation or Beyond Celiac has notes about how to behave. Sometimes I think of trying to start a support group here. I looked for one in the beginning, but couldn't find one. There used to be one but it is defunct.
I know this is long. Thank you again very much for your help!