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Esophageal Lichen Planus

Autoimmune Diseases | Last Active: 4 days ago | Replies (127)
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@johnbishop

Welcome @peanut4777, @sadea0208, and @peanut4777. I'm tagging @petlover777, @jsbell1940 and @drottningomma who have also posted in this discussion and may have some experience to share.

While we wait for members to share their experience, I thought you might find the following references helpful:
-- Oral Lichen Planus Fact Sheet: https://www.gofsindy.com/files/2016/08/Oral-Lichen-Planus-Fact-Sheet.pdf
-- Esophageal lichen planus: Current knowledge, challenges and future perspectives: https://www.wjgnet.com/1007-9327/full/v28/i41/5893.htm.

Do you mind sharing what your biggest challenge is with esophageal lichen planus?

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Replies to "Welcome @peanut4777, @sadea0208, and @peanut4777. I'm tagging @petlover777, @jsbell1940 and @drottningomma who have also posted in..."
sadea0208 | @sadea0208 | 6 days ago

Hi! The biggest challenge I have with ELP is the swelling in my esophagus. It feels like I have a "golf ball" stuck in my esophagus.
Food, pills etc...get lodged! Many beverages don't go down my esophagus and cause a "foam" which cups back up and cause vomiting.
Thus, I have to go into the surgery center and be put to sleep so my specialist can try to stretch my esophagus. In addition, the doctor does biopsies.
ELP can cause Esophageal cancer.
Unfortunately, the stretching is temporary. My esophagus will become swollen again and the doctor has to try and stretch it again.
This occurs every few months.
There's always a risk of causing a serious tearing my esophagus.
I do get small tears each time.
ELP causes "bands" around the esophagus.
It's like having rubber bands around it.

I absolutely can not eat any spicy foods (not even black or white pepper) because they cause swelling in my esophagus.

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