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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: Sep 27 7:19am | Replies (994)

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Hello. I have the uterine leiomyosarcoma as well. Full hysterectomy in 2021. In 2022 removed a tutumor from my lung. I have been told the same information. I have follow up ct scans every 3 months and hope each time that I have clear scans. With all my research and w my drs I find the the same information you have. That I need to remove the tumors are they come up. If I learn anything new I'll post to you.

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Replies to "Hello. I have the uterine leiomyosarcoma as well. Full hysterectomy in 2021. In 2022 removed a..."

Thank you for taking the time to reply to my email. Did you or do you take an estrogen blocker? Do you know anything about doing a MRI rather that CT scan to avoid the radiation? Keep up the good fight.