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@santosha

Hi @abalthas
I can very well understand your despair and anguish with your daughter!!! I am so sorry for both of you! But always remember that God does not give such challenges to weak shoulders. I know that perhaps saying that is not of much help in this moment of despair. I myself, have prayed to the Lord to take me back home many times during difficult times of my epilepsy treatment as I thought I did not have the strength to deal with it. I see I was wrong, that I had strong shoulders to face this situation. But in a moment of despair, we are just emotions.
As many have already said here, you do not need a hospital stay for an EEG. I have done my EEGs in a private healthcare institution that provides medical diagnostic services to patients and is covered by my insurance. But I do not live in the United States. Would that not be a possibility instead of doing this EEG in a hospital?
Is your daughter being helped by a psychologist to deal with this fear of seizures? My neuropsychologist who has been with me almost since my diagnosis in 2019 gave me much support in the whole process of treatment and in those difficult times. I do hope your daughter's insurance does cover such treatment.
My best vibrations to you and your daughter!
Santosha

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Replies to "Hi @abalthas I can very well understand your despair and anguish with your daughter!!! I am..."

Hi Santosha,
Unfortunately I am unable to transport my daughter - she had a Penn neurologist but she stopped treating her because I couldn't get her the EEG. Even stopped prescribing her Lamotrigine so I needed to ask primary care doctor to do; otherwise she would have no seizure meds. I have never heard of a psychoneurologist but that sounds like it would be helpful. I appreciate the kind words