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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: May 18 6:58pm | Replies (554)Comment receiving replies
Good evening. It's bedtime and I see you have been moved up in the world because of your good journey story.
So........I will thank you for responding to my inquiries so promptly. Let's move on a bit this evening and see what we discover.
First......I think I led you astray with the head report. Yes, the head pain is inside and sometimes just down the back of the neck. There is also quite a bit of what I call tingling pain. It used to worry me a lot and I try to always relate it to what might be doing the initiation. I do know some of it is stress.......and frequently the side effect of my latest condition......cognitive decline? When I can't remember something then I begin to worry and my head seems to react. I checked this morning during Yoga and my head never heard even in a "Downward facing dog" pose. I also had a major concussion when I fell off my horse and I think it comes back to pester me.
And let me check your other inquiries. Medical issues........I have what they call radiculopathy. That refers to sensitive nerve endings that appeared as a result of one of the 10* orthopedic surgeries that resulted from falling, aging, and arthritis. Three were spine surgeries so I am now pretty careful. That is why the cause of my neuropathy is labeled traumatic. Three rear-end car accidents also added some issues.
Other than that I have always been athletic and healthy. I belonged to a trekking group of women and we walked almost every day to get ready for week-long trips to interesting places like the Ring of Kerry in Ireland.
Regarding medication, I absolutely abhor taking medication of any kind when I don't know how my body will respond. So my neuropathic pain is completely controlled by medical cannabis. I was introduced to cannabis by a nurse friend 10 years ago and have been on my own figuring out appropriate products and doses since being diagnosed with SFN.
I too ended my working career by owning my own business. It was a wonderful experience.
Would you please tell me more about your statement about feeling SFN head to toe throughout your entire body? Are your hands numb most of the time?
Goodnight........
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Thank you for your reply , sorry to hear about all the tragedies you have experienced in your precious life ...Hugs ....As for myself , I never had any serious physical injuries , thanks to the Grace of God ...I don't have painful tingling or numbness as you described ....The symptoms I have are literally throughout head to toe as described ..it's literally every fiber of my being ...the sensation, intensity rotates and is always same sensation throughout depending on that sensation at that time ..wheaten it's pins and needles or burning , or inflammation feeling ...as described in my precious posts ...I am very sensitized to simplest foods as such anything high in vitamins..banana as it's high in B vitamins ..it will trigger the nerve pain to intensify..So, for you to understand Benzodiazapam effect GABA receptors ..they induce GABA receptors in the Brain ..they open these channels to induce more GABA , of our own produced GABA to a point that these channels are opened, that they are no longer used as our own God given GABA , that's because that drug is now producing it for us..sadly Dr's perscribe it for everything and anything ..me it was V dryness while I was peri menopause...My ex ...threatened for me to take it...unfortunately I obliged in fear ...Biggest mistake I ever done in my life ....Now suffering reprecusions 12 years plus later ..Keeping in mind I was only on it for 4 and half months ...which is way over now recommended time..As my Family Dr at that time suggested it was safe..And Said it was safe to just stop any time ...That's awesome you don't take pharmaceutical drugs ...I have never in the past prior to Benzodiazapam or since..I am against it , look up Heather Ashton Manual for Benzodiazapam...
I think I went through a huge wave (which is a high intensity of symptoms with no relief ) as a result I had a molar pulling recently that the antistetic gave me a huge set back for weeks ..as I mentioned our CNS are over sensitized from what that medication done to our receptors ...As today feeling alot of relief finally ...So, I am more uncertain if I have or don't have SFN , at this point today I say highly unlikely ...from the stories I been reading here ..But , who knows ..our body's, brains , CNS ,are a mystery...Thanks for listening ..Hoping you enjoy your wonderful day...Hugs