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← Return to Esthesioneuroblastoma
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Head & Neck Cancer | Last Active: Feb 9, 2023 | Replies (2)
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Welcome @k1e2n3n4e5t6h7. I moved your post to the Head & Neck Cancer support group here: https://connect.mayoclinic.org/group/head-neck-cancer/
I'm tagging @jessskoldal who also has esthesioneuroblastoma. You can read some of her journey here:
- Head & neck radiation side effects continue, especially swelling https://connect.mayoclinic.org/discussion/head-and-neck-radiation-side-effects/
Did you have additional treatment after surgery? How was/is recovery post endoscopic surgery and craniotomy?
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I had i week of radiation but developed thrush that I couldn't shake so I told the radiology team I was stopping radiation after speaking with my dentist who had talked about all the problems I would probably incur. They didn't like this decision but I am at peace with it knowing full well that I just may have shortened my survival time. Why prolong one's life if the quality isn't good? My life partner of 53 years is right with me & do I ever love her!! This is my 3rd separate area cancer bout & the journey continues.