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Desperately Trying to Get Diagnosed

Autoimmune Diseases | Last Active: Mar 6 10:40am | Replies (97)

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@helent

What is ehlers danlos?

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Replies to "What is ehlers danlos?"

Connective tissue disorder. The most common one is Hypermobile Ehlers Danlos type. Other types are more rare, and have genetic testing, where as the hypermobile does not have genetic testing. It can take YEARS to get a diagnosis. I technically do not have the Hypermobile Ehlers Danlos, as most Drs don't feel confident enough to diagnose it, and it can be mistaken for other connective tissue disorders, fibromyalgia, chronic fatigue syndrome and chronic pain sydrome.

Symptoms include easy bruising, hypermobile joints, joint dislocations, joint pain, muscle issues with our muscles working so much to keep our joints in place, neck issues, headaches/migraines, CSF leaks, really anything that involves collagen can be affected.