Connect
Bland embolization or transarterial chemoembolization (TACE)
In Dec of 2019 I had grade 2 NET with Ki-67 of 7% tumors removed from my liver
According to my surgeon they are behaving like grade 2 NET and the chance that they are something other than NET is zero.
Thursday I am having a liver embolization done the radiologist wants to do a biopsy
Why???
My fear is that something can go wrong so why do it if nothing will be different from 2019
Has anyone else ever had a biopsy done where the tumor changed
Please advise
Like
Helpful
HugInterested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Connect
I just spoke to the doctor that did the procedure
I will get a mri in April and if the embolization worked on my right side
I will get the left side done in May
Thank you all for your caring support
-
Like -
Helpful -
Hug
2 ReactionsI so appreciate hearing from you @sophiarose. I'm sure you are looking forward to having the MRI in April and knowing if the embolization has done its work.
It's a pleasure to offer you support and caring. It's important to realize that we are not alone in this journey with NETs.
Will you keep in touch with any questions that come up?
Absolutely
-
Like -
Helpful -
Hug
2 ReactionsAnyone have this happen after getting the embolization done
1/11/23 all bloods perfect
1/12/23 Bland LiverEmbolization done
1/13/23 Released from hospital levels were rising
Continual leg pains down yo my feet hard to walk at times
3/16/23 Dizzy cold hands sweating feet major pain across my lower back very hard to stand
3/17/23 Had bloods drawn snd my levels were extremely high
See charts below all other bloods were perfect
Oncologist said it appears my disease is progressing
I think she is wrong because all this happened right after the procedure
Anyone can help
Thank you in advance
Oh so sorry for the bad stuff following embolization. Not sure if it is helpful but right after I had ablation of liver mets, I felt like I had hepatitis-pain severe in the liver area, aches and pains galore, weakness. I was told that each ablated area created an inflammation which made my liver feel sick. All complaints went away in 2 weeks and ablations “removed” 9 of the larger tumors. I am unsure if my liver function blood work was abnormal during that time but my liver sure was not happy till it healed.
-
Like -
Helpful -
Hug
1 Reaction@sophiarose
I am sorry to hear of your many problems since embolization. As @davisnrn mentioned, sometimes there is a worsening of symptoms after embolization. What was the date of your embolization?
Please remember that if you don't feel that your concerns are being addressed, it is always your right to seek a second opinion. Are you currently seeing a NET specialist?
My embolization was January 12, 2023
It took me about a month to truly recover
After the embolization I got bad leg pains and dealt with it thinking it was my sciatica acting up
But my leg pains had gotten worst
March 16th I got worst
My liver surgeon from my resection in 2019 said it is most likely from the embolization procedure and that in time it should get better
However I need to get an MRI to make sure no permanent damage was done to my liver
I will get that the first week of April
My liver surgeon is a NET specialist in a team with Dr Wolin in Mount Sinai in NYC
My GI NET specialist is at Sloan Kettering in NYC
I think and hope I am in good hands
Thank you for getting back to me
I am do grateful
-
Like -
Helpful -
Hug
2 ReactionsThank you for responding
As per my liver surgeon I have to get an MRI to make sure my liver wasn’t permanently damaged
I will keep the site posted
Again thank you
-
Like -
Helpful -
Hug
2 ReactionsHello @sophiarose,
I certainly look forward to hearing from you again. Has your MRI of the liver been scheduled yet? Will you continue to post with any concerns or questions?
2 weeks after blan embolization of my liver left side severe pain in my left side CT with contrast shower nothing I am in the hospital they think sepsis no test results yet but treating my pain still there all the time with shape intermittent stabbing pain had my right side done in January with no problems
Anyone else had this