← Return to Desperate Need of Help for Adult Daughter with Seizure Disorder

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@jakedduck1

@abalthas
Are your daughter's seizures active or controlled? Has she actually had a seizure or is she just concerned about the possibility of having one? What type are they and how often if she has them?
Seizure disorders are normally easily diagnosed on an outpatient basis. If your daughter is having a routine EEG that only lasts 20 to 45 minutes what’s the point of a hospital admission?
Chances of the EEG showing an actual seizure are quite slim. Even if the EEG shows abnormal electrical activity, the chances are at best 50-50 that the doctor will know the cause of the seizure. Seizures can happen anywhere anytime. It sounds as though your daughter is afraid of falling and getting hurt.
Injuries are sometimes a consequence of having a seizure disorder. I’ve had multiple shoulder surgeries and more stitches, staples and glue from minor injuries than I care to think about.
She needs to control her seizure disorder, not let it control her. Easier said than done sometimes.
What has been done to help control her fear and anxiety?
Anxiety can cause seizures in some people. Can friends, neighbors or relatives help you? Would Uber or Lyft be an option? Where I live, they have something called dial-a-ride that takes people to medical appointments.
Would Uber or Lyft be an option? Sounds like a counselor is needed and they can do that virtually.
Best of luck to you,
Jake

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Replies to "@abalthas Are your daughter's seizures active or controlled? Has she actually had a seizure or is..."

Hi Jake,
My daughter has cerebral palsy on right side. For several years she was able to walk with a gait. Once she started having seizures she stopped walking, I was able to get her in a wheelchair and get her to appointments, now, she has severe anxiety and gets several panic attacks a day, Any loud noise will make her cry. I am unable to move her as she has gained weight . As I mentioned she is afraid to move for fear of seizure - she shakes and her muscles tense up, has bitten her tongue. I have tirelessly tried to find a psychiatrist/psychologist to work with her online to no avail. She is very intelligent - all she has ever wanted in life is to live on a farm - she loves animals. I am 75 and still working, doing my best to care for her. My nerves are worn down but I'm all she has. Her biggest fear is I will put her in managed care somewhere which I have tried to avoid as I know she would not survive as she is very set in her ways.