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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1435)Comment receiving replies
I was diagnosed stage IV Adenocarcinoma 11/2020. Shocked and stunned as I was very healthy, working full time and moving a mile a minute! After the shock and sadness, I remembered that God did not say we would not have pain in this world. But He does give us tools to manage it. Would I choose fight or flight? What would my children and friends learn from this? I chose fight. With a second opinion we mapped out a plan. I jumped in it and kept my life going forward. My tools to fight:
1). 4 extremely deep long breaths several times a day
2) never sit longer than two hours from 8-7(except during chemo!)
3) do something every day that is about someone else(write notes, say hi, offer help)
4) get your affairs in order
5) eat your protein, listen to a dietician to fortify yourself
6)Be still with God each morning and give thanks
Be sure to get a second opinion. My attitude to be one of the 12% has led my team of doctors to think “out of the box” for me and I am so grateful. I am still working, volunteering and managing my treatments and RESTING. Don’t give up!
Replies to "I was diagnosed stage IV Adenocarcinoma 11/2020. Shocked and stunned as I was very healthy, working..."
Gamaryane
I have state 3 dx april/22. I have done gemcetibine/ abrazane stopped in Aug and proton radiation last week of Sept
Which brought my ca9-19 to normal
Surgery not an option.
May I ask what treatments youve done
I also have dueodenal stent and biliary stent and having some issues with digestion etc. and discomfort
any info or advice would be helpful. Im nervous … Im due for more scans in 2 weeks.
Thank you
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Thank you so much gamaryanne for your detailed reply.
I have stumbled on some of these strategies to some degree, but it is very helpful to know that they have worked for you, and to have specific recommendations.
Last night, for instance, I sent a list of 8 questions to my oncologist who has so far shown herself to be practicing her specialty strictly according to "standard of care," leaving me to discover a lot the hard way - no mention of "chemo brain" or "chemo hand-foot syndrome" for example.
I've found that the nurses who care for us are excellent resources as repositories of what patients say has worked or not worked for them!