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@mayoconnectuser1

beths77,

Go to Mayo Rochester as soon as possible - do not wait for your local system to follow their process. There are a few other centers with like capability .. like Anderson Houston. If one is closer or easier to travel to-from, go to that center.

The center equipment, like CT and PET/MRI, is far better, the radiologists are better, the oncologists are better. The timeline between tests is an hour vs days.

Has he had CA 19-9 blood marker test?

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Replies to "beths77, Go to Mayo Rochester as soon as possible - do not wait for your local..."

Yes he has and his levels are over 26,000.

Thank you for you advice.

I plan on calling them tomorrow and making an appointment.

I am expecting to get a treatment plan from our hospital today but before it is executed I want a consult at Mayo. I live in Michigan so it will be a little trip but I believe that it will be well worth it.

Beth