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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: May 18 6:58pm | Replies (554)Comment receiving replies
Hi Chris , thank you for your reply , my report states SFN testing results.... Tested for cooling and heat test were normal and laser doopler flare
imaging was normal
They done large and small fiber neuropathy
I am 58 years old , in immaculate health ..No Osteoporosis or Osteopenia...No Diabetes , No thyroid , No blood pressure issues , No autto immune , No RH , No Arthritis , No physical , or structual , mental , cognitive issues at all...No medical conditions at all...Very healthy ..except for what happened after I cold turkey off a med that I should of never taken ...My ex forced me to take it ...
I never took medications in my life , prior or since ...I deal with the pain as much as possible ...I was always physically active ...until recently ..the intensity seemed to get higher ..
You mentioned your skull feels nerve pain...
For me it's not on my skull ...it's inside where the brain is ..that's where I am dealing with all the nerve pain ...Whatever that's going on firing neurons , electricity, burning, or Pons and needles , or feeling of inflammation, or turns in to a chemical feeling ...whatever feelings inside my head it's transpired throughout my entire body ..literally head to toe ..not one fiber is untouched ...I don't have blood pressure issues , nor dizziness, or physical weakness , I sleep with a fan directly on my face body , as hubby likes it too hot innocent room..lol...that cold air fan or even heat don't effect me at all...
As far as the medication I took don't cause SFN ..it can mimic alot of diseases..but nothing more then that...it's been 12 plus years I been dealing with this ..as others I know are also suffering immensely from repercussions from that drug known as benzodiazapam...
I work from home , managing my own company this entire time ..But in chronic pain
Can you tell me do you have the berne pain inside your head ? Or it's just on the skull ?
Do you have any other medical issues ?
Do you take medication?
Thank you for replying greatly appreciated
Have a great night
Replies to "Hi Chris , thank you for your reply , my report states SFN testing results.... Tested..."
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Good evening. It's bedtime and I see you have been moved up in the world because of your good journey story.
So........I will thank you for responding to my inquiries so promptly. Let's move on a bit this evening and see what we discover.
First......I think I led you astray with the head report. Yes, the head pain is inside and sometimes just down the back of the neck. There is also quite a bit of what I call tingling pain. It used to worry me a lot and I try to always relate it to what might be doing the initiation. I do know some of it is stress.......and frequently the side effect of my latest condition......cognitive decline? When I can't remember something then I begin to worry and my head seems to react. I checked this morning during Yoga and my head never heard even in a "Downward facing dog" pose. I also had a major concussion when I fell off my horse and I think it comes back to pester me.
And let me check your other inquiries. Medical issues........I have what they call radiculopathy. That refers to sensitive nerve endings that appeared as a result of one of the 10* orthopedic surgeries that resulted from falling, aging, and arthritis. Three were spine surgeries so I am now pretty careful. That is why the cause of my neuropathy is labeled traumatic. Three rear-end car accidents also added some issues.
Other than that I have always been athletic and healthy. I belonged to a trekking group of women and we walked almost every day to get ready for week-long trips to interesting places like the Ring of Kerry in Ireland.
Regarding medication, I absolutely abhor taking medication of any kind when I don't know how my body will respond. So my neuropathic pain is completely controlled by medical cannabis. I was introduced to cannabis by a nurse friend 10 years ago and have been on my own figuring out appropriate products and doses since being diagnosed with SFN.
I too ended my working career by owning my own business. It was a wonderful experience.
Would you please tell me more about your statement about feeling SFN head to toe throughout your entire body? Are your hands numb most of the time?
Goodnight........