Good evening @laura163, and welcome to Connect. It doesn't look like I have to remind you that we need more information about the symptoms your body seems to be dealing with right now. You indicate that you haven't had a skin punch biopsy anywhere on your body.....ankles, hips, or other areas. This is a special test that measures the number of nerve cells you have in the nerve fibers. For example, my was .09%. That indicates that I don't have enough of those tiny fibers to be able to receive appropriate messages from my brain. So....my brain sends pain signals.

As I perused your symptoms I found many to be exactly like mine. My SFN actually showed its character early in my arms, hands, and skull. The skull area can really get riled up at times with pain as well as tingle-tangles. (my terms for the numbness and nerve pain). My feet started with a few twinkle toes and quite quickly, or so it seemed, moved on across the bottom of my feet and now seem to be knocking on the door at and above my ankles.

So....you don't have the hot and cold symptoms. That is rewarding. I generally have ice-cold feet and hands as opposed to hot ones. It does seem like my sense of the cold is much more severe than my MFR therapists feel from the outside.

What was the "other kind of SFN test you had in 2014? I have only heard of the skin punch biopsy test. I also have not read any post from a member with feelings that appear to end up in your mouth. A question. I do not know how old you are but I would like to know if you have been diagnosed with Osteoporosis or Osteopenia. That is when my mouth issues came into play.

You mention your medication in 2010. Are you thinking that it started your SFN?

Would you be so kind as to share with me what you actually do to alleviate your pain and discomfort? Just to get us started I will tell you that I have two sessions a week of MFR, Myofascial Release Therapy. There are two therapists with me in order to be able to work on feet, hands, etc. etc. Without MFR, I wouldn't be driving or having any kind of a happy, joyful life.

Are you looking for relief, answers, and current research information? OR??????

May you be safe, protected, and free of inner and outer harm.
Chris