mkportzen,

Thanks for your reply! My situation is very similiar to yours. My June and Dec CT scans said pretty much the same but the Dec said it was stable. My Jan PFT did improve slightly over the one from Apr 2022. It was very difficult for me to wean off the oxygen. I read an article about a woman with Long Covid and how she got back to normal with diaphramgmatic breathing exercises and a treatment program. Later in the article I found out her husband is a pulmonologist but it gave me inspiration and I did research on it and started my own program. I did some nebulizer treatments at home along with some herbal suppliments. I got to the point where I only needed oxygen when I was exerting myself but I could sleep at night and and have low activity without supplemental O2. Then my Dr finally put me in Pulmonary Rehab and after a couple weeks I could walk and do light activity without any O2 even with all the lumg fibrosis. Hang in there, you got to keep scratching and digging and you will find out what helps you the best. I am sure you have a pulse oximeter. Learn breathing techniques and see which ones make your O2 the best then practice those every day, multiple times.

Take Care!