Connect
← Return to Reducing prednisone
Discussion
Polymyalgia Rheumatica (PMR) | Last Active: Feb 7, 2023 | Replies (9)
Comment receiving replies
Your experience is sooo helpful. From 3mg. I am due tomorrow to go to 2mg. for the next 3 weeks. I requested a cortisol test on next week’s lab visit and she said she doesn’t typically do that, but will at my request! I am anxious to see if adrenals are beginning a stutter-start. However I am so afraid of a flair.
Replies to "Your experience is sooo helpful. From 3mg. I am due tomorrow to go to 2mg. for..."
Connect
One thing I learned was there isn't any "correct way" of tapering off prednisone. I took prednisone for 12 years before I found a way.
I had a good partnership with my rheumatologist for all 12 years. She didn't always like what I did but she didn't ever blame me for doing something wrong. I wanted to be off prednisone as much as she wanted me off. We tried everything until something finally clicked.
Just be aware that getting off prednisone is never easy. I personally believe that most of my problems were adrenal related. After a couple of years of PMR, I was never certain that PMR was the only problem.
https://www.endocrine-abstracts.org/ea/0037/ea0037ep46I still had adrenal insufficiency symptoms for a long time after getting off prednisone. My cortisol level was only "adequate" some of the time.