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DiscussionInterested in hearing people's experiences with PRRT
Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)Comment receiving replies
Replies to "Phyliss: Your response is sincerely appreciated. Can you comment regarding any side effects you may have..."
Certainly, but I want to stress first that everyone is different, and I tend to be one of those individuals that sometimes does strange things.
Three days after my first treatment I had vertigo, nausea and vomiting, diarrhea, chills, dizziness, stomach pain. Neither the oncologists at Mayo nor my local oncologist had ever heard of this reaction. So when I went back 8 weeks later, they halved the dosage (which I continued through treatment). Most common reactions after that were nausea (which we had success controlling with .5 mg of Lorazepam + 4-8 mg Zofran), diarrhea (usually controlled with Imodium), and fatigue - something hard for me to deal with but I learned to give in and rest when I needed to. So other than problems with the first treatment, I’d say all these reactions were pretty well controlled.