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Pancreatic neuroendocrine insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Sep 20 5:34am | Replies (73)
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@margaret12

Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was done for Your hypoglycemia and what helped. Did you have functioning or non functioning insulinoma? How fast were the liver mets multiplying/enlarging? Did anyone have 72hr fast test
Thank You,
Margaret

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Replies to "Do any of You had 11C-5-hydroxy-tryptophan PETCT or know if Your facilities offer it. What was..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 6, 2023

Hello @margaret12

You are asking some good questions. I would like to invite some of our members like @ahtaylor @links and @lastround to share their experiences with you.

What type of scans have you had so far? What is your medical team currently suggesting to control the hypoglycemia?

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