How do you manage symptoms of an overactive thyroid?

Posted by eileenb1022 @eileenb1022, May 2, 2022

hello,
i hope im in the right place. i have had hypothyroidism for 19 years. i was 35 when diagnosed i am now 54. in that time i have also been always on the genetic version on synthroid. when i went to my pcp(whom i am changing because he really does not want to help me) with my symptoms including heart racing. with that i checked my heart on my husbands kardia mobile. most of the time at least the several times i checked i was in tarchacadia and bpm over 100. my pcp checked my tsh and that is all. it was .24 he said it was low and that my dosage was to high. he reduced it from 150 mg to 137 mg. that was 3-4 weeks ago. no difference. same symptoms. i also have anxiety so im sure that isnt helping. i asked to see a endocronologist he reluctently sent the referral they never got it then i found out he sent it to some place at this hospital thats backed up with referrals. i talked to a functional doctors office. the person i talked to said this doctor was booking out 4 months and based on my symptoms i needed to be seen asap. which scared me. so back to this pcp who really doesnt want me to bother him. i asked him to send a urgent referral. they got it but my pcp didnt add anything about that i was wearing a 7 day heart monitor or about tarchacadia. they wouldnt call me i had to call twice. friday i talked to someone and she was suppose to call me back. never heard anything. when it got to 4:30 on a friday i called. the person i talked to was not helpful. she said the doctors said mine was not urgent just routine. i told her about wearing a 7 day heart monitor and being in tarchacadia she offered me a appointment in september! i said what? i cant wait that long my heart is racing she said well then maybe you need to see a cardiologist then i hung up. someone on another board said i needed my free t-3 and free t-4 checked as my pcp only checks my tsh. i sent him a long message yesterday explaining everything about my symptoms, that i still think im on too high a dose. what the endo office said and if he didnt want to see me send mr=e to someone who will see me at least until my new pcp gets my records which could take at least another 3 weeks. i did get a message early this morning it was from my pcp's nurse she got my message but my pcp is out this week but that she sent him my message and he usually when out checks his messages. so i wait. add on to of it im weaning of a anxiety/panic med i have been on for 20 yrs in all these years noone ever told me it was a controlled substance. i had to fight with my med nurse last week for a hour to help me wean off of it onto a safe anxiety med. she actually wanted to up my dosage of my med that is a controlled substance i said no way then she suggested something i probed her until she admitted it was a anti psychotic i said no. she said we are running out of options i stood my ground she finally prescribed buspar. as well as slowing weaning me off of klonopin. i told her my former gastro dr's nurse practioner had mentioned it to me. that it was a anxiety med but it also help with appetite suppressent. this med nurse said i never knew that. i just looked at her in disbelief and concern. she's not that good. she is new. she started in january. my med nurse who she replaced was so amazing with me when i found out she resigned i cried so hard. i cried for days. even now when i think of her, i tear up she did so much for me. im sorry this is so long. if it helps i live in new hampshire. thank you for listening and reading this.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

I feel for you, I am also out of options I feel shakiness all over, been to 11 endocrinologists and they are clueless, I have Hashimoto's not on thyroid drugs, this thing affects my cardio system and my BP goes either too low or too high and I feel like a heaviness in my heart and air hunger. Have not found the cause and I am going crazy with this shakiness and all, I cry because I ambit living just existing, I was very active and now can't do exercise or I might get SVT (Supra ventricular taquichardia) all very depressing. If anyone feels like this and know the remedy to get rid of this please share it. Thanks 😢

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I had my thyroid removed years ago and have been hypothyroid ever since, I take levothyroxine. I also have tachycardia. I'd recommend going to an internist, I'm happy with my local internist and he can handle such issues himself.

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Overactive Thyroid
Hi I Am New To This Group I Just Wondered If Anyone Is Taking Carbimazole I Started Taking A High Dosage 6 Weeks Ago 30g And Now The Doctors Have Dropped My Dosage To 20mg Since I Have Been Taking Them I Have Dramatically Had Week Bones Ie Musle Cramps Week All Over I Just Wondered If Anyone Has Or Had The Same Symptoms Also I M On HRT For Menopause And Bisoprolol For Heart Medication Which I Have Been Taking Fir The Last 5 Years But No Problem With Them 2 Medicines Thank You

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@red64

Overactive Thyroid
Hi I Am New To This Group I Just Wondered If Anyone Is Taking Carbimazole I Started Taking A High Dosage 6 Weeks Ago 30g And Now The Doctors Have Dropped My Dosage To 20mg Since I Have Been Taking Them I Have Dramatically Had Week Bones Ie Musle Cramps Week All Over I Just Wondered If Anyone Has Or Had The Same Symptoms Also I M On HRT For Menopause And Bisoprolol For Heart Medication Which I Have Been Taking Fir The Last 5 Years But No Problem With Them 2 Medicines Thank You

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@red64 Good morning and welcome to Mayo Connect.
I see you are dealing with several medical conditions at once. Adding a new medication can always cause new side effects.
One of the the common ones from Carbimazole is exactly the aches and pains in bones and joints you describe here. I am glad your doctor listened and reduced the dosage to give your body time to adjust.
Are you feeling any better after the change? If not, can you talk to your doctor about alternatives?
Sue

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@red64

Overactive Thyroid
Hi I Am New To This Group I Just Wondered If Anyone Is Taking Carbimazole I Started Taking A High Dosage 6 Weeks Ago 30g And Now The Doctors Have Dropped My Dosage To 20mg Since I Have Been Taking Them I Have Dramatically Had Week Bones Ie Musle Cramps Week All Over I Just Wondered If Anyone Has Or Had The Same Symptoms Also I M On HRT For Menopause And Bisoprolol For Heart Medication Which I Have Been Taking Fir The Last 5 Years But No Problem With Them 2 Medicines Thank You

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Hi @red64, I add my welcome. I moved your post to this existing discussion in the Endocrine System support group: https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

I did this so you can easily connect with other members, like @eileenb1022 @khali, who are talking about managing symptoms and medications related to an overactive thyroid.

Along the same lines as @sueinmn mentions about adding medications, have you considered talking with your pharmacist to review all your medications?

You might be interested in this related discussion:
Medication reconciliation: Who do I talk with to review all my meds? https://connect.mayoclinic.org/discussion/stop-all-medicine/

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@sueinmn

@red64 Good morning and welcome to Mayo Connect.
I see you are dealing with several medical conditions at once. Adding a new medication can always cause new side effects.
One of the the common ones from Carbimazole is exactly the aches and pains in bones and joints you describe here. I am glad your doctor listened and reduced the dosage to give your body time to adjust.
Are you feeling any better after the change? If not, can you talk to your doctor about alternatives?
Sue

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Hi Sue Thank You For The Reply I Have Not Spoken To My Doctor As Yet Its Impossible To Get Them To Ring You They Just Dropped My Dosage Over The Phone Well The Receptionist Did But I Am Not Happy With The Way My Body Is Changing Rapidly When As I Say Before I Was Put On Carbimazole My Body Was Fine Looks Like I Shall Be Making A Doctors Appointment Thank You For Getting Back To Me On This Subject I Shall Let You Know The Outcome Of My Visit To The Doctors

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@colleenyoung

Hi @red64, I add my welcome. I moved your post to this existing discussion in the Endocrine System support group: https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/

I did this so you can easily connect with other members, like @eileenb1022 @khali, who are talking about managing symptoms and medications related to an overactive thyroid.

Along the same lines as @sueinmn mentions about adding medications, have you considered talking with your pharmacist to review all your medications?

You might be interested in this related discussion:
Medication reconciliation: Who do I talk with to review all my meds? https://connect.mayoclinic.org/discussion/stop-all-medicine/

Jump to this post

Hi, thanks for redirecting, only thing is I don't take any medications for my thyroid

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