← Return to Post Covid 19 and Pulmonary Fibrosis

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@mkportzen

I too was in the hospital for 3 weeks, a year ago with covid pneumonia and on oxygen since, I had pneumonia the following May of 2022, and 3 months of shingles in July. I have been seeing my pulmonologist after checking a CT scan in September and another this past January, they seem to be the same. He said I have Post Inflammatory Pulmonary Fibrosis that was stable. My pulmonary function test came back better than the one in September, and since taking pepcid seems to not cough as much, he would like me to keep doing what I’m doing. I do steam my breathing every morning and evening with some eucalyptus mixed with other oils which seems to keep my mucous looser.
I am still on oxygen because I’m in a mile high elevation, but soon to move and hopefully not have to use it except for over exertion or bedtime.
The lady in my room at the hospital was told that her lungs were scarred too.
My husband has read that Omicron really messed with the respiratory area.
I will be seeing a different pulmonologist after we move and he does a lot of research, so it will be interesting what he has to offer.

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Replies to "I too was in the hospital for 3 weeks, a year ago with covid pneumonia and..."

mkportzen,

Thanks for your reply! My situation is very similiar to yours. My June and Dec CT scans said pretty much the same but the Dec said it was stable. My Jan PFT did improve slightly over the one from Apr 2022. It was very difficult for me to wean off the oxygen. I read an article about a woman with Long Covid and how she got back to normal with diaphramgmatic breathing exercises and a treatment program. Later in the article I found out her husband is a pulmonologist but it gave me inspiration and I did research on it and started my own program. I did some nebulizer treatments at home along with some herbal suppliments. I got to the point where I only needed oxygen when I was exerting myself but I could sleep at night and and have low activity without supplemental O2. Then my Dr finally put me in Pulmonary Rehab and after a couple weeks I could walk and do light activity without any O2 even with all the lumg fibrosis. Hang in there, you got to keep scratching and digging and you will find out what helps you the best. I am sure you have a pulse oximeter. Learn breathing techniques and see which ones make your O2 the best then practice those every day, multiple times.

Take Care!