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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@larry4343

Hi @amandajro, thank you for the reply. And the link.
I’m switching hospitals in April (first available) to Mass General. My current neurologist (a stroke specialist) haas been trying to transfer me to one of their own neuromuscular specialists, but they are convinced from an EMG that I have a lumbar radiculopathy with an early case of idiopathic peripheral neuropathy. It’s that team that blocked the IVIg.

FWIW, I’d be happy with a radiculopathy, but two radiologists and a spine surgeon say my MRI is clean. So I’m stuck with one side saying it’s X, and one side saying it’s not. Neither is willing or able to treat, and my neurologist just shrugs.

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Replies to "Hi @amandajro, thank you for the reply. And the link. I’m switching hospitals in April (first..."
Lorraine | @lmill7 | Feb 6, 2023

Hi Larry. I’ve been looking at th discussion.
“ no sense in treating neuropathy “ a lazy cop out because th nerve damage PROGRESSES.
I’m having same problem your having.
A skin biopsy is one sure fire way th other is an MRI of Sciatic nerve itself.
These r 2 fool proof tests.
EMG isn’t sensitive enough fr SFN.
My tremors r awful now n my muscle pain is at least a 15 on a 1-10 scale.
I replied to another post u had I think.
Food n plant supplements are medicine.
I’ll b praying fr you too✝️🇺🇸

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