Hi @larry4343, I'm hoping other members that experienced the same struggle getting the IVIG treatment can share with you. I did find this 2018 article that discusses the problem and might give you some ideas.

-- Review process for IVIg treatment - Lessons learned from INSIGHTS neuropathy study:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276327/

I feel your frustration. Six years ago my doctors then wanted to do an MRI as part of their diagnostic approach to understanding my idiopathic PN but couldn’t because of the metal in my ICD. My local Neurologist and 2 Neurologists from different medical university hospitals hours away from where I lived that I was referred to for consultations all documented it in their records. I had to move to another state, and 2 years ago, my ICD came due for replacement after a long life, so my cardiology team replaced the device and wires with newer parts that make my ICD compatible now to easily get an MRI when needed. I was excited, but my Neurologist in that state I’d moved to was not; his opinion was I didn’t need it! I practically begged… I wanted a little more closure to know that no stone has been left unturned in my idiopathic diagnostic journey. I haven’t been able to completely let go of the thought we could possibly learn something from it, especially since 3 neurologists in 2016/2017 said they’d wanted one. My PCP, a great doctor but in the same medical system as that Neurologist, couldn’t/wouldn’t overturn him since he was the specialist in Neuropathy, who honestly did nothing at all for my neurological “care” the 2 years I was with him.
Fast forward to now - this week I moved back to the state I lived in 6 years ago, but this time the city is in the same area as the medical university hospital I had a consultation with. I’m not keen on using that system for everything, but I have opted to schedule with the Neurologist I saw in 2016. I wonder if she’ll stick by her original documented note about the desire for an MRI for my case, or if she now changes to my last doctor’s belief there’s no chance of finding anything from it now. If she has changed her mind about the benefit of an MRI to put closure on doing everything we could do to try to diagnose and manage my care, then I think I can come to terms with it, and I imagine I’ll get a good reasoning for her change in decision. It won’t be from insurance though, most of what I’ve read from this group is that MRI’s are pretty commonplace for Neuropathy patients.
So I sympathize for wanting a treatment if there’s a chance it will help you improve, and you have had previous good results from it. I’m only asking for a test. It’s by far the reason we have moved close to this university hospital; in fact, it was far from my destination of choice. But 2nd opinions from different medical systems are your best shot at getting an individual/unbiased new decision. Sure, previous medical records follow you, and in many cases are read, so all bias won’t be removed, and there may be a lot of professional courtesy to not override previous doctors or do the work required for a new personal assessment, but I’ll be hoping you get a fair review!

Good morning,
In response to your post, I have been receiving IgG infusions for over a year now and it has been with great success. I was diagnosed with CIDP and I had severe leg weakness, fatigue, paresthesia and pain. The IGG infusions have helped with weakness, paresthesia, and fatigue. I am on Medicare and we had to jump through hoops for approval of IgG. One big issue was that I had to have tried other treatments first, meaning steroids. Once I tried steroids without success they approved IgG.
Also you mentioned you were on a good diet aside from sugar. I have found that when I eat sugar my symptoms are severe. Exercise, good diet, and decreases stressors always make my life better.
One last thing in todays medical world, I can’t express enough YOU HAVE TO BE your own ADVOCATE. Sometimes a second opinion can help!
Please keep us informed about how things are going.