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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1 1:21pm | Replies (445)

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@davidsonk

I was diagnosed with PMR in July 2022 by my rheumotologist. Mine is only lower extremities as well. Have a hard time walking at times, especially after a day of being on my feet. Did predinose for almost a year (was prescribed prior to seeing my Rheumotologist), but need to get off. Going to start infusions soon. Hoping that works without the side effects.

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Replies to "I was diagnosed with PMR in July 2022 by my rheumotologist. Mine is only lower extremities..."

Hi @davidsonk, Welcome to Connect. Sorry I missed your first post in the COVID discussion and hoping the new treatment helps. Do you mind sharing what type of infusion you will soon begin having? Will you be tapering off of prednisone along with the infusion?

So many of your experiences are like what I am going through right now. I had to go back to 3mg and soon I will have to try and reduce to 2 1/2. I am apprehensive as I really don't want to feel anymore pain. I also have to find an osteoporosis treatment that also does not generate pain, not an easy one. I try and not get discouraged but it's hard when the worst illness I have had in the past was over on a couple of weeks. I have gathered some great help from realizing my Magnesium was of poor quality with only one element in the dose. So I found a better one with three elements and it has helped a great deal. To date, I have found answers and help in this forum every time I go into it. Thank you people.