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Confused about diagnosis: Carcinoid tumor in rectal area

Neuroendocrine Tumors (NETs) | Last Active: Nov 3, 2023 | Replies (35)
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@4237220

Thank you for this link. It was very helpful. I have done a 24 hour urine test. What should I look for with the results?

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Replies to "Thank you for this link. It was very helpful. I have done a 24 hour urine..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 6, 2023

@4237220

After rereading many of your posts with Colleen, @colleenyoung, I think you would be wise for you to see a NET specialist. Carcinoids and/or NETs are definitely cancer but not the typical cancers that general oncologists see in the majority of their patients. If you could get even a virtual consultation, that might be very helpful to you in putting all of this together and getting the best treatment plan in place. Here is a list of these specialists, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

If you have any problems with insurance coverage, please know that you can appeal any insurance denial. The process is different with every insurance company, but many patients have gone through this process.'

I would like to follow up with you. Will you let me know how this Wednesday's appointment goes?

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Teresa, Volunteer Mentor | @hopeful33250 | Feb 14, 2023

Hello @4237220

I was noticing that your last post was a couple of weeks ago and I was wondering how you were doing?

I look forward to hearing from you again. Any new information from your doctor?

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