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Replies to "Hi @nemo1, While we wait for members with experience to respond, I thought I would share..."
Polymyalgia Rheumatica (PMR) | Last Active: Feb 9, 2023 | Replies (16)
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Hi @nemo1, While we wait for members with experience to respond, I thought I would share a couple of references that might provide some of your answers.
-- Inflammatory Myopathies Fact Sheet: https://www.ninds.nih.gov/health-information/disorders/inflammatory-myopathies
-- Autoimmune Myopathies: Updates on Evaluation and Treatment: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277300/
Replies to "Hi @nemo1, While we wait for members with experience to respond, I thought I would share..."
Does the rheumatologist work a patient up for myopathy causes? Can a neuromuscular doctor do the same? I have appointments coming up for both. My neurologist suggested I see the NM doctor. In these articles it looks like a rheumy might do work up and muscle biopsy ?? I’m a bit confused.
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Thank you John. Its such a time for us - dealing with health issues, that kind of don’t have a home, a diagnosis that would cover a long history. It’s time for answers. Thanks again, I’ll read up on what you have provided.