← Return to Post Covid 19 and Pulmonary Fibrosis

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@sunny8

I will share with you my husband's experience with IPF, discovered after
major heart surgery seven years ago. He was given "two or three" years to
live. He was started on Ofev twice daily.

It has been seven years and he suffered no disability until he experiencd
mild covid Aug, 2022. In Sept, 2022, long covid SOB began. No other
symptoms, just serious SOB with activity. He now must use O2, 2 ml.

My advice, do take Ofev. It will extend your life. Try to avoid covid.

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Replies to "I will share with you my husband's experience with IPF, discovered after major heart surgery seven..."

sunny8

Thank you for sharimg your experience. I am sorry that your husband is going thru this. I will pray for him!

It is very difficult to wean off the oxygen once you get used to it. I read lots of stories and articles on people trying to get off it. Diaphramatic breathing exercises and a host of other
treatments finally got me weaned off but I still have to take it easy for I do not have a lot of reserve. Did your husband experience any side effects from OFEV?

Thank You!
God Bless!