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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Hello @larry4343. I can empathize with your circumstances in that you seemed to be showing some improvement but now don't have access to the that same treatment. I am sure that is frustrating. I found an existing discussion on IVIg infusions, so you will notice that I have moved your post here:
- IVIG Infusions: https://connect.mayoclinic.org/discussion/ivig-infusions/
Members such as @casey1329 @catharbert and @jfn may be able to come back to share some more with you on their IVIg journey.
Have you considered a second opinion?
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Hi @amandajro, thank you for the reply. And the link.
I’m switching hospitals in April (first available) to Mass General. My current neurologist (a stroke specialist) haas been trying to transfer me to one of their own neuromuscular specialists, but they are convinced from an EMG that I have a lumbar radiculopathy with an early case of idiopathic peripheral neuropathy. It’s that team that blocked the IVIg.
FWIW, I’d be happy with a radiculopathy, but two radiologists and a spine surgeon say my MRI is clean. So I’m stuck with one side saying it’s X, and one side saying it’s not. Neither is willing or able to treat, and my neurologist just shrugs.