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DiscussionPancreatic neuroendocrine insulinoma
Neuroendocrine Tumors (NETs) | Last Active: Sep 20 5:34am | Replies (73)Comment receiving replies
Replies to "Hi Marlene [and all], I also live in Massachusetts and am going to Dana Farber. As..."
Hello
I have had about 16 rounds of chemo..happening every two weeks.
The primary tumor is pancreatic and I have lesions on the liver. My scans thus far have shown
shrinkage so the plan is to continue on the chemo...Foflox..
Yes the eating is hard....but having the insusolinoma I have to try to maintain the sugars..so I have to force it..soups are good,easy to eat..but sometimes not enough protein.I do make some shakes,but that doesnt quite help the sugars. Yes the neuropathy is hard..but I dont want them to change the chemo so I try to just deal with it. As long as the chemo is working they will continue it. All they tell me is that there are other things but we are not there yet.
I do get quite nauseous especially after the chemo...so dealing with that and trying to keep my sugars up is quite challenging.Orignally they said no surgery....but I am hoping there are other procedures they might be able to do. I know some people who have had ablations and PRTT procedureds to help kill the lesions. Im hoping they will have a plan..for now this is it.Please dont hesitate to reach out with questions...open to hear about your journey..ps also at Dana Farber!
My best
Marlene
Hi
I am happy to engage a conversation on my personal email if you would like!
My primary tumor is in my pancreas with lesions on my liver.
Happy to let you know what I have been treated with and going thru!
Marlene