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Severe brain fog with possible MCTD
Autoimmune Diseases | Last Active: May 1 9:47am | Replies (21)Comment receiving replies
I am at this very place in my life. I have had so many symptoms since 2015/16. Rash that the dermatologist said was a possible side effect of spray sunscreen since it happened when I spent time in the sun. Tummy issues, muscle aches in trunk, hands, feet and neck. Heart issues that were undetectable on EEG and ultrasound. I had one doctor suggest I get mental help as he thought I was having a mental crisis. Finally in 2022 I was diagnosed with MCTD. I have had progressive brain fog to the point I can no longer remember words or things I have done. I am a teacher and my students are catching my mispelling. Words come out that I do not intend to say. I was afraid I had Dementia. Turns out it is brain fog. I am seriously worried one day I will forget who I am. My Rhumetologist says no processed food, no coffee, no sweets. I completly changed my diet thinking that I would get rid of the brain fog. It is not helping. I am not myself and have no idea where else to turn. My Dr is no help with this. I have no idea where to turn next. Any ideas or suggestions will be helpful.
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I agree doctors are no help. I asked my rheumi and he said to talk to my neurologist (I have trigeminal neuralgia and also increasing white spots in my brain). My neurologist had no idea either. I cant give up the coffee because I need the caffeine to focus. Im so sorry about the teaching and the issues it is giving you. When I was still working as a senior journalist I was lucky to have a very good friend sitting next to me in the office who helped me find the words I kept losing -- like, you know that think that does x y or z, or the word that means something like ... Sending love.