Hi Bob and Welcome!
I read your other post regarding your insulinoma metastasis to the liver. I am sorry to hear. You may have read above but I have had multiple insulinomas removed and/or ablated in 2 different surgeries. For some time now they have been monitoring multiple indeterminate lesions on my liver - some that have some metastatic characteristics but so far unable to determine if they are insulinomas/metastasis. I go back to Mayo in April for some more testing of the lesions.
You asked about treatments in your other post. I am currently on Octreotide (long-acting) and it is effective at deceasing the hypoglycemia significantly. My challenge with Octreotide has been a past anaphylactic reaction so I required a desensitization procedure prior to being able to take it again. This was done because, of all the treatments I have tried, Octreotide has been the most effective for combatting hypoglycemia.
You also mentioned considering getting another opinion at Mayo. I have been receiving treatment and care at Mayo for my insulinomas since 2017. I have been very pleased with both the expertise and compassion I receive in all my experiences at Mayo. I wish you the very best in your journey and sounds like it has been a challenging one to say the least.
I am happy to engage with any questions you may have for me. Take care!

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