← Return to Chronic (15yrs) Severe Cyclical Digestive Issues- No Diagnosis- HELP

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@ilean

I tried to get into Mayo but they didn’t accept me. Why? I have no idea. Been diagnosed with POTS in August 2022. Have lost 26 lbs(weigh 97 lbs now, 2 endoscopies, 2 colonoscopies, Ct’s, MRA, MRI, 3 GI’s, 2 pain doctors, 4 ER visits, Gallbladder removed, enlarged parathyroid removed, seen allergist, urologist, PCP, 2 general surgeons seen for opinion, etc….more meds than you can imagine, delayed gastric emptying test, pill camera swallow. No-one can diagnose my severe upper abdominal pain, gas, bloating, severe nausea 60 percent of the time. It hurts so badly if I eat I now have food aversion. Have had 2 different nerve blocks, Ketamine injection How sick do you have to be to be able to see a Dr at the Mayo Clinic. I am malnourished and dehydrated. The dehydration was even noted on my MRI results. My PCP says he no longer has hospital privileges, GI Drs all said they have never admitted anyone to the hospital or requested home health for dehydration or malnourishment. UTSW is scheduling appointments 13 months out. I won’t be alive in 13 months. I have been pretty much bedridden since January 2022.

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Replies to "I tried to get into Mayo but they didn’t accept me. Why? I have no idea...."

Please look into Mesenteric artery ligament syndrome. The epigastric pain during/after eating and digestive issues are big signals.

Have you been tested for Chronic pancreatitis or EPI? If you haven’t had one already, ask for a fecal elastase test. Good luck!