Digestive issues

I am a 57 year old white male. In September 2018 I had a paraesphagial Hiatal Hernia repaired. Since the surgery, I have had a lot of abodnminal pain on both the left and right side, and almost constant diahrea, and nasuea.

They have done CT scans (with and without contrast), MRIs, Barium Swallow tests, Colonoscopies, endescopeies, Gastric Empting studies, breath tests for bacterial over growth, food alergies tests, Thyrodi Tests, Caridac tests, and neorologica tests. So far they have not been able to figure out what is going on from any of these tests.

They keep redoing the tests to try to figure it out but nothing. I have been working with specialists in the motility department at UCLA and Cedars-Sinai in Los Angeles for the past 4 years and they have not been able to figure it out. In 2019 they they found my pyloris valve was spasaming. They thought that was causing the diaharea, nausea, and the pain. They then gave me botox injections into the Pyloris Valve. This worked ok for a couple of months, then stopped working. I then had surgery to repair the Pyloris Valve. Unfortunately this did not solve the problem, I still had abdominal pain, nausea and diahrea after I ate anything. They also have tried many types of medications that have not worked, including Pancreatice Enzyme pills. They have also tested for bacterial over grouth

I have been in the hospital at least 7 times in the last 3 months. They have been trying different medications and nothing has worked. In June I went on a Vega diet and cut out all meet, dairy, bread etc and started drinking protein smoothies to try to reduct the weight loss. This helped but I still had pain, anusea and diahrea when ever I ate anything solid. Theyran more tests and nothing.

Most recently I have been in the hospital at least 7 times in the last 3 months. Once for a blockage from another barioum swallow test, twice for infections in the intestines, one of which was for sepsis and possible internal bleading, that they were not able to determine the cause. I was also hospitalized multiple times for galstone attacks and the eventual emergency removal of my galbladder I was hoping that the galbladder removal would help with the issue, but it has not.

Now the pain in my abdomen on the lower left side is constant. It is mild now all of the time, at time a very sharp pain. It worse if I eat or drink anything. I am also getting pain on the lower right side of the abdomen. The pain is also now going up the left side of my body under my ribcage and and a little up the back. It now hurts if I get out of a chair or stand up. At times it is a shooting pain. I am going to be going in for another CT with Contrast in about 3 weeks and I am wondering if there is a test that my doctors are missing. I feel like the doctors are not taking this serious, and they are just guessing now. The pain, nausea, and diarahea is detroying my ability to live a normal life. My mother, and at least one her aunts died from pancreatic cancer which is making me even more concerned. IAny suggestions on what my doctors should be looking at or for, or additional tests that might possibly be usefull would be appreciated. Thank you everyone.

I am a 57 year old white male. In September 2018 I had a paraesphagial Hiatal Hernia repaired. Since the surgery, I have had a lot of abodnminal pain on both the left and right side, and almost constant diahrea, and nasuea.

They have done CT scans (with and without contrast), MRIs, Barium Swallow tests, Colonoscopies, endescopeies, Gastric Empting studies, breath tests for bacterial over growth, food alergies tests, Thyrodi Tests, Caridac tests, and neorologica tests. So far they have not been able to figure out what is going on from any of these tests.

They keep redoing the tests to try to figure it out but nothing. I have been working with specialists in the motility department at UCLA and Cedars-Sinai in Los Angeles for the past 4 years and they have not been able to figure it out. In 2019 they they found my pyloris valve was spasaming. They thought that was causing the diaharea, nausea, and the pain. They then gave me botox injections into the Pyloris Valve. This worked ok for a couple of months, then stopped working. I then had surgery to repair the Pyloris Valve. Unfortunately this did not solve the problem, I still had abdominal pain, nausea and diahrea after I ate anything. They also have tried many types of medications that have not worked, including Pancreatice Enzyme pills. They have also tested for bacterial over grouth

I have been in the hospital at least 7 times in the last 3 months. They have been trying different medications and nothing has worked. In June I went on a Vega diet and cut out all meet, dairy, bread etc and started drinking protein smoothies to try to reduct the weight loss. This helped but I still had pain, anusea and diahrea when ever I ate anything solid. Theyran more tests and nothing.

Most recently I have been in the hospital at least 7 times in the last 3 months. Once for a blockage from another barioum swallow test, twice for infections in the intestines, one of which was for sepsis and possible internal bleading, that they were not able to determine the cause. I was also hospitalized multiple times for galstone attacks and the eventual emergency removal of my galbladder I was hoping that the galbladder removal would help with the issue, but it has not.

Now the pain in my abdomen on the lower left side is constant. It is mild now all of the time, at time a very sharp pain. It worse if I eat or drink anything. I am also getting pain on the lower right side of the abdomen. The pain is also now going up the left side of my body under my ribcage and and a little up the back. It now hurts if I get out of a chair or stand up. At times it is a shooting pain. I am going to be going in for another CT with Contrast in about 3 weeks and I am wondering if there is a test that my doctors are missing. I feel like the doctors are not taking this serious, and they are just guessing now. The pain, nausea, and diarahea is detroying my ability to live a normal life. My mother, and at least one her aunts died from pancreatic cancer which is making me even more concerned. IAny suggestions on what my doctors should be looking at or for, or additional tests that might possibly be usefull would be appreciated. Thank you everyone.

I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.

I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.

This has been getting increasingly worse as I get older. I am a 53 yr old female.

TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.

Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.

Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.

Medications: NEXIUM
LEXAPRO
TRAZADONE

I get

I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.

I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.

This has been getting increasingly worse as I get older. I am a 53 yr old female.

TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.

Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.

Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.

Medications: NEXIUM
LEXAPRO
TRAZADONE

I get

Thank you so much. It has been getting increasingly more difficult to endure. I am trying to find a doctor through Mayo clinic but have no idea where to start. I tried filling out the information on line for Mayo Clinic GI Consultants, but every time I submitted it says "Your submission could not be completed at this time, try again later". I tried two times and got the same error message.

I live in Seattle and have some great GI Doctors, but their knowledge is exhausted.

I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.

I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.

This has been getting increasingly worse as I get older. I am a 53 yr old female.

TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.

Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.

Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.

Medications: NEXIUM
LEXAPRO
TRAZADONE

I get

I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.

I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.

This has been getting increasingly worse as I get older. I am a 53 yr old female.

TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.

Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.

Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.

Medications: NEXIUM
LEXAPRO
TRAZADONE

I get

I tried to get into Mayo but they didn’t accept me. Why? I have no idea. Been diagnosed with POTS in August 2022. Have lost 26 lbs(weigh 97 lbs now, 2 endoscopies, 2 colonoscopies, Ct’s, MRA, MRI, 3 GI’s, 2 pain doctors, 4 ER visits, Gallbladder removed, enlarged parathyroid removed, seen allergist, urologist, PCP, 2 general surgeons seen for opinion, etc….more meds than you can imagine, delayed gastric emptying test, pill camera swallow. No-one can diagnose my severe upper abdominal pain, gas, bloating, severe nausea 60 percent of the time. It hurts so badly if I eat I now have food aversion. Have had 2 different nerve blocks, Ketamine injection How sick do you have to be to be able to see a Dr at the Mayo Clinic. I am malnourished and dehydrated. The dehydration was even noted on my MRI results. My PCP says he no longer has hospital privileges, GI Drs all said they have never admitted anyone to the hospital or requested home health for dehydration or malnourishment. UTSW is scheduling appointments 13 months out. I won’t be alive in 13 months. I have been pretty much bedridden since January 2022.

I have had chronic, cyclical digestive issues for over 15yrs.
THE CYCLE: No, or minimal BM's for 2-10days. Over that time frame I get increased bloating, severe painful gas, nausea and feeling full after a few bites. Without warning, I will get an extremely urgent need to have a BM, along with aching joints in wrists, knees etc. (So urgent, I have had an accident 2x) With this urgency, I will have severe abdominal pains and while having a BM, I will repeatedly vomit at the same time. (I have bowls in all my bathrooms for this) This will go on for 20mins - 60mins of BM/vomiting/pain, aside from shakiness and weakness, the symptoms are relieved, but the cycle starts all over again.

I go copious amounts of looser stool. Never hard stool, even though I have not gone to the bathroom for 3-10days. Its truly like there is a kink in a hose and everything backs up behind the kink until it gets too much. When it "gets too much"(I never know when this will occur) and I have become increasingly more uncomfortable, bloated and have such horrible gas I can't stand up straight. This "purging" vomiting/loose stool at the same time, can go on for a few days, depending on the length of time since I have gone, or simply be a one time, violent "purge" episode.

This has been getting increasingly worse as I get older. I am a 53 yr old female.

TESTS: Swallow Study, LES not working correctly, sliding hiatal hernia, endoscopies with some inflammatory lesions (no obvious cause) Stool samples show chronic inflammation indicators in the stool, low potassium, and chronic anemia and intermittent high blood protein. Colonoscopies show nothing horribly obvious. I swallowed a camera capsule and it was determined that I had very rapid movement through the small intestines, some inflamed lesions through out intestines, but no diagnosis. I do get very thirsty and drink about 70oz of water a day. There are no food triggers that we can find.

Does anyone have similar issues? A doctor that I should see to help with this? I am desperate. I would love any help you may have.

Doctors are stumped and I am getting increasingly more depressed as I feel more and more sick. There is no relief.

Medications: NEXIUM
LEXAPRO
TRAZADONE

I get