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How do you cope with Mixed Connective Tissue Disease?
I am going through it also.
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Hi @jennifer2010, you'll notice that I removed your email address from the public forum. We recommend that you use the secure, private message function to share personal contact information to avoid getting unwanted spam. Keep in mind that by sharing here, you will help many.
It really helps to hear from others who have first-hand experience with MCTD. I really like the questions that @1corinthians926 asked. perhaps you can help answer some of them.
– What are some questions you wish you would have asked when doctors were running diagnostic tests?
– Do you have specific antibodies for which you recommend to be tested?
– Specific data/ notes you wish you would have recorded about your symptoms? Scans that provided crucial informational?
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