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How do you cope with Mixed Connective Tissue Disease?

Autoimmune Diseases | Last Active: Aug 8, 2023 | Replies (65)
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@1corinthians926

Hello. I am not officially diagnosed, but it has been suggested I may have MCTD with beginnings of Scleroderma (19 yo female). What are some questions you wish you would have asked when doctors were running diagnostic tests? Do you have specific antibodies for which you recommend to be tested? Specific data/ notes you wish you would have recorded about your symptoms? Scans that provided crucial informational?
Thanks in advance!

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Replies to "Hello. I am not officially diagnosed, but it has been suggested I may have MCTD with..."
Teresa, Volunteer Mentor | @hopeful33250 | Dec 12, 2018

Welcome to Mayo Connect, @1corinthians926.

You are asking some great questions. Here is some information from Mayo's website that you might find informative, https://www.mayoclinic.org/diseases-conditions/mixed-connective-tissue-disease/symptoms-causes/syc-20375147. I'd also like to invite @wofmaria and @guthealth to this discussion.

Also, here is a link to a video presentation about Scleroderma. While it was shown in 2017, you might find it helpful,
https://connect.mayoclinic.org/webinar/video-qa-about-scleroderma/

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