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Just diagnosed with Bladder Pain Syndrome / Interstitial Cystitis
Kidney & Bladder | Last Active: Jun 15, 2023 | Replies (42)Comment receiving replies
Thank you... you were able to paint a good picture of how we must do our own research! I'm glad you found a combo that works. I had an appt yesterday with my Urogynocoloist. I was nervous mentioning that as a result of watching several You-Tube videos, I had started myself on 10mg of amitriptyline (I had in medicine cabinet, but never used for diabetic neuropathy pain). My doctor responded positively, saying she recommends 25mg of amitriptyline for BPS/IC and it works for many patients. After 6 days on this drug, my bladder pain level decreased to a level 4-5. It feels good to be able to walk without level 7-8 pain in my pelvic region. I'm starting the 25 mg tonight.
I'm going to stay on the D-Mannose. My pain has definitely improved this week. Hope it continues!
Replies to "Thank you... you were able to paint a good picture of how we must do our..."
Great news! I hope you continue feeling better each day!
Hi Lucy, I’ve had IC for almost 30 years. After going through menopause my IC got much better! Then I got Covid two years ago and now have post Covid. My IC has flared up as has my arthritis. Post or long Covid attacks your weakest areas so this made sense. I’ll have 4 to 5 good days and then 2 bad ones. I’m hoping as Long covid wanes so will my IC.
Can you tell me what D-mannose is? I’m not familiar with it. I was so sorry to read about your pain and glad to hear you have found some relief. After having IC for so long myself, I,ve tried almost everything. Feel free to question me if I might shed light on something
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I hope your pain decreases! I know the feeling of being almost "happy" with a 4-6 pain level when something starts to work! Best to you as you heal from this bout!