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Husband has Dementia, unknown origin as of now
Caregivers: Dementia | Last Active: Feb 6, 2023 | Replies (6)Comment receiving replies
I’ve been told, “home” is not a place. It’s a feeling. Sometimes I say, we are staying here tonight. We will go tomorrow. Or , your parents are not there. They left you here with me so we could take care of each other. If he asks where his parents are, I tell him they are off an adventure or trip, looking up old friends and acquaintances, just seeing who they can find that they used to know. Sometimes , I can sit beside him, holding hands. Then when it’s time, I just say, “Come on, let’s go to bed” and he’s okay with that. I am not going to tell him every day that his parents are deceased. It’s too upsetting.
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Hello Pattyinal .... I’m a caregiver for my husband who was diagnosed with MCI due Alzheimer’s Disease 3 yrs ago (although symptoms had appeared at least 5+ yrs ago). I’ve found advice and understanding from many sources, including here on Mayo Connect! I might also point you to a Facebook page called dementia_careblazers which is by Dr, Natali Edmonds. She has impressive credentials and experience. She also has a YouTube
Channel. These are free of charge, although she does offer courses for a fee. No pressure. She addresses ways to help when your loved one keeps saying s/he wants to go home. I think your responses seem perfect. Hope this information is helpful as several of us caregivers in our Mayo Habit support group have found her to be knowledgeable and helpful.