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Welcome to the NETs Group! Come say hi.

Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)
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@sueannsellers

I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one in my liver. I am being referred to Mayo Clinic. I know very little about these tumors as I am just beginning this journey. I thought it would be best for me to join a group of people who are going throue ugh this type of experience to get answers and provide support to others where I am able to do so, Thank you for allowing me to join you.

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Replies to "I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one..."
Colleen Young, Connect Director | @colleenyoung | Feb 5, 2023

Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation about your recently diagnosed neuroendocrine tumors in the lung and liver. Which location? MN, FL or AZ?

Oh, you may have noticed that I moved your message to our welcome and introductions discussion here:
- Welcome to the NETs Group! Come say hi. https://connect.mayoclinic.org/discussion/welcome-to-our-new-group/

I did this so you can read previous posts and get to know some of the members. I'd particularly like to tag fellow NETs members like @hopeful33250 and those who have lung and liver NETs like @melmangen @surbhi1 @tufan @gapsc @aliatl @osiejay26 @popkorhn to name a few.

Many patients with NETs have shared that it can be a long journey to get a proper diagnosis. How were you diagnosed?

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