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Welcome to the NETs Group! Come say hi.Neuroendocrine Tumors (NETs) | Last Active: May 27 4:56am | Replies (368)
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Replies to "I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one..."
Welcome @sueannsellers. I'm glad to hear that you are being referred to Mayo Clinic for consultation about your recently diagnosed neuroendocrine tumors in the lung and liver. Which location? MN, FL or AZ?
Oh, you may have noticed that I moved your message to our welcome and introductions discussion here:
– Welcome to the NETs Group! Come say hi. https://connect.mayoclinic.org/discussion/welcome-to-our-new-group/
I did this so you can read previous posts and get to know some of the members. I'd particularly like to tag fellow NETs members like @hopeful33250 and those who have lung and liver NETs like @melmangen @surbhi1 @tufan @gapsc @aliatl @osiejay26 @popkorhn to name a few.
Many patients with NETs have shared that it can be a long journey to get a proper diagnosis. How were you diagnosed?