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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 days ago | Replies (6004)

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@gbny1224

How bad are your flare ups ? I'm getting flare ups just out of the blue every day they last about 15 mins. Suicide level pain on the legs and somewhat on the shoukders. The worse one I had the other day my legs and shoulders hurt and was crying for about 40 mins. Also my arms hands and head were burning. I got in my truck and was headed to the er because this one lasted much longer. I ended up turning around when it finally went away. Not much they can do pointless to go really.

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Replies to "How bad are your flare ups ? I'm getting flare ups just out of the blue..."

@gbny1224 sorry to hear you are going through this. For me, it is more like a staggered rise in pain. Basically pain increases, then have to adjust what I take to better control the pain, that then works for a period of time (weeks to months), and then pain increases again. Unfortunately the plateaus of relative pain relief are getting shorter and the pain increases more difficult to control.

I have made peace (as much as possible) with what is going on and won’t go back to the doctor or ER and just late fate run its course.

I have developed high heart rate and dizzy when I stand or lift a heavy pail of water, etc. Didn’t associate that with my neuropathy. Sure it’s the same thing?

@gbny1224 and @wbblanche have a look at this Cleveland Clinic JoM article on small fiber neuropathy where it discusses autonomic neuropathy and dysautonomia: https://www.ccjm.org/content/85/10/801

And this page from the Cleveland Clinic going into more detail on dysautonomia: https://my.clevelandclinic.org/health/diseases/6004-dysautonomia

It is possible.

@gbny1224 you will notice that I have moved your post on flare ups into an existing discussion that I see you've joined previously. You can find your post here now:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Have you ever tried something topical like arnica cream to see if it would reduce your pain during flare ups?