ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

I am in Virginia and I have a 10 yr that was diagnosed with ACNES syndrome several months ago. His pediatrician diagnosed him, and has recommended ibuprofen and heating pads which aren't offering a lot of relief. The pediatrician mentioned injections but doesn't know where to send him for it. There are pain clinics in my area but they don't treat kids. The only place I could find online that treats ACNES in children is the children's hospital in Boston. I'm just trying to see if anyone out there has any information or advice on where he could be treated in Virginia. I am willing to go out of state but would really prefer something local. Thank you.

I was cured of horrible ACNES on 9/2/21 by Dr Thomas Gillespie at St Joseph’s Medical Center in Phoenix. He severed my T8 T 9 and T10 abdominal nerves by performing a Robotic Laparoscopic procedure on me. Went home same day. To qualify one need to visit a pain management center and get a trigger point injection(s) in the affected area. It is only a very temporary fix but it will verify that it is ACNES. Any surgeon will most likely require this done before a procedure/surgery is performed.

Almost 3 years in severe pain with NO HELP. I finally diagnosed myself! Twenty three (23) doctors claimed they "never heard of A.C.N.E.S." so my stack of medical literature was ignored, as was my horrendous pain. Can't sit for nearly 3 years. I repeatedly posted on this site and others, no response to A.C.N.E.S, and NOW you're saying it's COMMON? Central sensitization has worsened the pain. I had all the hallmarks: prior abdominal surgeries, positive Carnett's, and trigger point injections but only temporary relief..21 stupid prescriptions that did nothing. This month I FINALLY FOUND A PHYSICIAN WHO LISTENED, and I underwent resection of anterior cutaneous nerve branches at T7, T8, and T9, with pathology reporting three traumatic neuromas. Gee, I'm SOOOO glad you figured it out. Congratulations.

Hello,
Just stumbled on this post because I am trying to find a physician to help a friend that has FINALLY been diagnosed with ACNES. She is suffering a great deal - may I ask who you finally ended up seeing that listened to you? Thank You!

Dr Thomas Gillespie, surgeon at st Joseph’s Medical Center in Phoenix cured me of ACNES via robotic laparoscopically. Truly a miracle. I’d be happy to explain . You may contact me if you’d like to get details. He has cured other from this site . Jeff

I am in Virginia and I have a 10 yr that was diagnosed with ACNES syndrome several months ago. His pediatrician diagnosed him, and has recommended ibuprofen and heating pads which aren't offering a lot of relief. The pediatrician mentioned injections but doesn't know where to send him for it. There are pain clinics in my area but they don't treat kids. The only place I could find online that treats ACNES in children is the children's hospital in Boston. I'm just trying to see if anyone out there has any information or advice on where he could be treated in Virginia. I am willing to go out of state but would really prefer something local. Thank you.

Hi Jeff @jgroudan - you'll notice that we removed your email address. Connect is a public forum. We recommend sharing personal contact information using the secure private message function.

I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.

Where is the secure link? Do not see it.

Dr Thomas Gillespie, surgeon at st Joseph’s Medical Center in Phoenix cured me of ACNES via robotic laparoscopically. Truly a miracle. I’d be happy to explain . You may contact me if you’d like to get details. He has cured other from this site . Jeff