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Neuroendocrine tumor: What tests are used for diagnosis?

Neuroendocrine Tumors (NETs) | Last Active: Feb 17, 2023 | Replies (37)
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@skkirby

Hi there-

I initially had pancreatitis. Because of that, my physician ordered a variety of lab work and CT scans.
After they noticed my tumor from the CT scan, I had a PET scan, biopsy and (FNA)- fine needle aspiration performed at Mayo. Because my tumor was initially small in size (<1 cm) and deemed as stable, the physician's decided to take a wait and see approach and I was monitored very closely from 2014 - 2020 with repeat biopsies and FNAs every six months. In early 2020, I wasn't feeling so well and when I went back for my next FNA/biopsy it came back as malignant. My surgery was January 4, 2021 at Mayo Rochester. I have been very, very satisfied with my experiences at Mayo. (In July 2000, I had lung cancer surgery at Mayo Rochester for a baseball size mass on my right lung and a baseball sized mass behind my heart). Glad to help answer your questions. If you have additional questions, please feel free to reach out.
Warmest Regards,
Sherry

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Replies to "Hi there- I initially had pancreatitis. Because of that, my physician ordered a variety of lab..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 4, 2023

@skkirby
Hello Sherry,

Sharing your experience here on Mayo Connect is encouraging for many who are anticipating treatment for NETs. I'm glad that you posted this good report of your experience with surgery at Mayo.

I see that you mentioned a mass on your lung. Was this a carcinoid tumor? I'm also wondering what type of follow up you will be having for the pancreatic NET?

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