I have MCAS with co-morbid POTS, IBS, Narcolepsy, and a lot of skin flushing/cold sweating. Symptom relief meds I've been taking are constantly problematic, especially since getting a virus two months ago. Treatment has felt like a vague experiment, and it's not going well.
I've heard a million good things about VNS for pots/mcas, but I haven't noticed a difference myself. I'm currently not doing it because my TENS unit wore out from pretty moderate use and I'm not sure what to replace it with. Will they all crap out that fast?
Has anyone here had genuine success with VNS via TENS unit? Long enough to know it's not placebo? Like most people with MCAS I'm at the point where I'll try about anything. All ears.