Hi All,
I have not been a member of the group for very long. My husband's incidental pNet finding occurred in September '22 and we began the long march toward understanding NETs, that most of you are aware of. He was not having any symptoms and the PET scan only showed the pNet (in the tail) and a couple of potential lymph nodes in his mesentery.

Two weeks ago, the pNet was resected, along with his spleen in an open surgery. The lymph nodes turned out to be nothing. His pathology showed a G1 with ki67 of <3% and none of the nodes examined (13 of them) showed any signs of cancer. There was also an IPMN hanging out with the neuroendocrine tumor. The 6-month dotatate 68 followup PET scan has been changed to a regular CT.

He is doing well post-surgery and we are beginning to learn how to plan for a future again. I share this because success stories meant so much to me when we were struggling with his diagnosis and what the future held. I hope it can help someone else.

I am so thankful for The James Cancer Center at OSU (hope I'm allowed to mention them), the care was exceptional. I encourage everyone to find a NET specialist to help them.